tag:blogger.com,1999:blog-8629957802371664956.post5756068652371975058..comments2023-10-31T06:48:37.595-07:00Comments on Our Bundle of Joey: Feeding Disorder...Really?Cori Sarno Villacreshttp://www.blogger.com/profile/04734378744175117235noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8629957802371664956.post-57514661354540914252010-07-01T17:18:22.767-07:002010-07-01T17:18:22.767-07:00I'm so sorry that you got such a run around! ...I'm so sorry that you got such a run around! I thought our 3 month wait was bad, but at least when we did go in for the study it was quick and no issues.<br /><br />For those that worry about their kids aspirating, please follow your instincts and push to get a specialist to look into it. We had an OT doing feeding therapy with Sweet Pea for 9+ months and she didn't say anything about possibly aspirating the entire time! I personally believe speech pathologists or OT's associated with hospitals might know this area better than OT's that mainly do traditional OT.<br /><br />We now use Simply Thick to get to a honey consistency. It's a gel and doesn't continue to thicken over time which was important to us. It's expensive though. :-(Sweet Pea's Mommyhttps://www.blogger.com/profile/04865365312620255005noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-23376095637639845562010-06-26T23:46:13.281-07:002010-06-26T23:46:13.281-07:00Thanks for the info :)Thanks for the info :)Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-9123031778129614032010-06-26T21:01:08.314-07:002010-06-26T21:01:08.314-07:00oh goodness! This sounds terrible and what I mean ...oh goodness! This sounds terrible and what I mean is all the trouble you went through just to find out something you already had a feeling about. What an ordeal!! So you thought he might have this because of his congested sounds after eating??<br />I might have to keep my eyes on Max. He has that very high palate too and hides food up there for later which is so gross!<br /><br />Hope that the help comes smoothly so he gets it taken care of quickly!<br />xoxoxox<br />cCatherine Justhttps://www.blogger.com/profile/18142568389620451476noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-20639158859995729772010-06-26T08:46:57.238-07:002010-06-26T08:46:57.238-07:00Kristin,
We did get the initial referral from our ...Kristin,<br />We did get the initial referral from our pediatrician to the speech pathologist. After the speech pathologist did the feeding evaluation we were referred for the modified barium swallow study. We just recently switched Joey from size 2 nipples on his bottle to a size 3 (which I think is a 6 month size) and we have to thicken it with "thick-it" to a nectar consistency. He still sometimes sound congested after eating but it is better than choking. His problem is mainly with thin liquids but they also observed some issues with a delayed swallow lack of coordination with solids. Apparently he has a really high palate and food gets stuck up there...but anyway...start with your pediatrician.Cori Sarno Villacreshttps://www.blogger.com/profile/04734378744175117235noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-90458659162050207722010-06-26T08:08:34.165-07:002010-06-26T08:08:34.165-07:00He's such an adorable child!!!He's such an adorable child!!!The Sanchez Familyhttps://www.blogger.com/profile/02193773268823617205noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-74565123773076622072010-06-26T07:27:08.701-07:002010-06-26T07:27:08.701-07:00Yikes! Well obviously Joey didn't get the memo...Yikes! Well obviously Joey didn't get the memo because he's a very impressive eater! I can testify to that! Will be praying for him! Love, Megan FeraMeghttps://www.blogger.com/profile/03612212332476296459noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-81384831772585692922010-06-25T22:34:14.663-07:002010-06-25T22:34:14.663-07:00First, I LOVE your new blog header photo. I can&#...First, I LOVE your new blog header photo. I can't stand how cute he is!!! As for feeding issues, you'd never know it by the way that boy eats solid food! Way to go, Joey! What a runaround you've been getting on tests and follow-ups, etc. I pray he doesn't get sick and that the treatment-feeding plan helps him.Monica Crumleyhttps://www.blogger.com/profile/11292679754594755040noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-78408400855037748542010-06-25T22:16:32.890-07:002010-06-25T22:16:32.890-07:00Is his issue just with liquids? This sounds too fa...Is his issue just with liquids? This sounds too familiar. Did your pediatrician have to give a referral to get you an appt? I have been wondering this forever about my little guy. He does great with table food, but again today I tried a sippy with milk - it was a joke. At 15 months we still use the 3-6 month size nipple on the bottle so he doesn't act like he's drowning.Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-8629957802371664956.post-18014472307779606682010-06-25T22:01:37.391-07:002010-06-25T22:01:37.391-07:00UGH! I mean, I'm glad you are finally moving f...UGH! I mean, I'm glad you are finally moving forward, but seriously! It's too long! Love the pics of Joey going to town on the buffet :)Lisahttps://www.blogger.com/profile/16749431284192436424noreply@blogger.com