Joey has a Nystagmus. We noticed it a few months ago and got a referral to a pediatric opthamologist (apparently the only one in Sacramento) in August. Our appointment was not supposed to be until November 2, but they called us yesterday when they had a cancellation so I took him to see her yesterday.
She told us that a congential Nystagmus usually begins between 3-4 months of age. Joey's, however, began later. Since Joey's onset is not textbook she wants to do an MRI (which has to be done under general anesthesia) to rule out any other potential causes such as a brain tumor. I am very scared and upset over having to go back to the hospital.
The MRI is scheduled for October 22. While Joey is under anesthesia, the doctor is also going to insert a probe into his clogged tearducts. Hopefully this will clear up the chronic eye infections that he gets every couple weeks.
The doctor assures me that a brain tumor is really rare, especially where, as with Joey, there are no other signs of intracranial pressure. I am still really scared though and am not ready to see my baby in a hospital bed, with an IV again and having to be put under anesthesia. I just hope they don't have to intubate him too. Please pray for him.